Saturday, April 9, 2016

'Life Is Short' Story Of Dwarfism Couple

Bismillah:)

Life is short. Ni tajuk buku yang I nak sangat baca and beli. Actually I am a big fan of TLC channel. I can say repeat hari hari watch this channel pon takpe, memang suka sebab dorang selalu keluarkan inspiring story, resipi best and obviously travel.

Ok the point is I just nak story about dwarfism couple(orang kerdil) ni named Jen and her husband Bill Klein. Jen ni doctor while Ben seorang businessman. They adopted son and daughter, yang uniknya bukan dari tempat dorang sendiri, they did travel and adopted them. From where, seriously I x engat. But yang paling inspiring is watching how they handle situation tu. Dorang kecik kan, and most of the time memang kene pakai stool tok panjat tempat tinggi, and if driving kene ada extension pedal as diorang tak sampai nak pijak. But still they manage. Impress sangat sangat!



the book !


ben & jenn

the family !

Wat i know since Jenn was born, parents dia not even expect yang anak diorang ada dwarfism symptom as semuanya normal. Just during birth dekat labor room, mak Jenn kena stay in wad lebih dari 24jam sebab komplikasi bersalin songsang. And then, baru diorang suspect something dekat baby tu. 

Shorten the story, during that time, dunia perubatan still old time technology but lucky her, she was taken care in real safe hand Dr Kopits from John Hopkins Hospital. Dr Kopits ni actually physician , 
family background physician dari Hungary. But during his stay and working in USA, dia banyak sangat deal dengan special case like Jane, so he went into special field yang focus kat orang orang special macam ni. Cerita ni sangat panjang and inspiring ! I nak summarize pon banyak medical terms yg I x faham so better u guys check it out sendiri ye.:)

I cuma sangat sangat adore semangat diorang ni. Lack in physical, but mentally they are very very tough ! Inspiring stories ! Ni satu je family yang I nak story, actually ada 2 3 family lagi yang macam ni, as if u guys wanna know more, jadila big fans of TLC like me:)

Friday, April 8, 2016

Pengalaman Handle Baby Eczema

Bismillah:)

Post ni actually draft lame sangat sebab PC rosak so keje keje memblogging become very slow in motion lah. Kite nak story sikit how I handle  Adam time eczema dulu, apa yang I pakai and step step yang I buat untuk treat Adam. Sampai I resign job just nak focus treat and cure Adam. Chu olls tahu, baby eczema ni memang akan keep menggaru taw, and worst if eczema die satu badan,memang kesian.

Luckily, Adam's eczema cuma effect muka dia je, but still kesian sebab malam malam dia susah nak tido and keep scratching. Berdarah darah muke die . Ya Allah sedih betol tengok die time tu. Lagi bile balik raya, memang kesian as orang pon tak berani nak pegang die, even myself sedih susah nak kiss gomol gomol my baby. So here's the story, based on my experience taw bukan iklan sponsored:)

1) JUMPA PAKAR KANAK KANAK

Ok. Actually we brought Adam jumpa pakar kanak kanak after 2 weeks die kene eczema. Kenapa? Sebab I nak confirm betol betol apa yang Adam face sebenarnye, ruam panas biasa or eczema. We went to Klinik Erlina, Kemaman. Siapa stay Kemaman, maybe familiar dengan clinic ni. Doc story yang eczema ni berpunca dari lapisan lembapan kulit ni tak cukup built up(my own understanding) means protection layer kulit yang berfungsi nak protect kulit dari infection tu maybe terlalu nipis and belum perfect betul to fight against infection or wat = kulit kering.

2) FULLY BREASTFEED

Adam special sebab since out from oven die terus search for my boobs. haha. means die terer hisap susu. I tak ajar. Latching semua self service. haha. Adam fully bf, bagus sebab susu ibu ni ada antibodi semulajadi. But for me, I have to pantang makan lots. For ibu yang tak dapat nak bf baby,its ok , alternate boleh bagi susu kambing ye. But still cons dia,susu instant baby ni die manis. Im not sure, dia letak pemanis gula or stevia or dextrose, tis one kene request consult dengan pakar taw. I dun now how far it effects baby eczema.

3) PANTANG MAKAN

Yessss!!! Eczema ni kena trace satu satu ape yang buat eczema ni flare balik. Ada yang allergy makanan, ada sebab cuaca, and last one is genetic. Wat I did? Initially WAJIB pantang telur ! I perasan bile stop makan telur, eczema tu kering and tak flare dah. Bile makan,yes luka eczema tu jadi basah gitu. WAJIB pantang gula and tepung ! Gula ni sebenarnye memudahkan kite kene infection, melemahkan antibodi ( as wat I assume and understand) and tepung certain people is gluten intolerance, so please AVOID this three . I cuma minum air masak, madu, kurma, sayur air and ikan selar kuning goreng. Tats it! Sampai Adam 6 7 bulan after eczema OK, baru I qadha' balik makan semua yang I kempunan. hehe.


3) APPLY WATERBASE CREAM

So to treat this, externally kene apply cream yang water based to keep kulit die moist all the time. BIG NO to apply any OIL based cream taw sebab oil base ni time apply je die buat kulit kite licin, but actually does not absorb pon kat kulit,tapi menghalang kulit bernafas = block kulit. So kulit still kering. U know air and minyak kan memang cannot mix right? Highly recommended this one called SOLVE cream, beli dari clinic erlina ni jugak. I pernah try cari this cream dekat farmasi Jb & KL but memang takde. So I assume cream ni rare! Chu olls boleh try ye tis cream.




4) GROUP SUPPORT ECZEMA

Ok tis is penting sangat. In any problem, chu olls kene ade support. I join grup dekat Fb je. search and request to join ye. Sana ada sangat banyak info, and chu olls please baca and go thru satu satu. If tak faham,boleh terus tanya,coz memang in grup mcm tu semua story based pada pengalaman masing masing, bukan review produk sahaja. Its better. Otw chu olls mesti end up beli and test banyak banyak product,tapi tak konsisten pakai, and finally u said it doest work. MEMBAZIR.

5) JANGAN CAMPUR CREAM

Ni pon penting. Let say chu olls dah pakai 1 cream ni, please jangan pakai cream lain. And apply nipis nipis je. Especially yang apply steroid cream, please. Tak halang. But depends. Tengok keadaan juga. Sometimes if teruk sangat, steroid might works. Betul tak? Nak natural,go natural, desicion is yours. And buat patch test dulu taw before apply any cream.

6) SUPPLEMENT

I consume Shaklee as additional. Omegaguard & vitamin C. Omegaguard ni function dia untuk prevent inflammation and vit c for antibodi. Ni depends, nak amik boleh tak amik pon boleh. I pon x konsisten makan supplemen. Cuma pemakanan je I jaga sangat sangat sangat !

7) BERANGIN, KERING, SEJUK, TAK PANAS

Rumah yang ade aircond ni advantage la. Baby comfortable sikit. But me I have no AC at home, so kipas memang on sekuat kuatnya, sliding door tinted untuk bagi rumah gelap. Please ensure area eczema tu tak basah ye, kering tapi lembab letak waterbased cream, and surrounding mestila tak panas and selesa. If necesary, baby pakai baju jaring jaring tu, boots and mitten pon dah cukup.

8) SARUNG TANGAN ECZEMA

Yang ni special glove untuk eczema. Ada jual. but I dunt buy any haha. I cuma masukkan tangan adam dalam seluar die. so die tak dapat garu garu. Nak nangis biarkan. HATI KENE KENTAL wa cakap lu bro! Kesian but it works!

9) MAKAN RAW GARLIC

YES I do makan garlic mentah mentah. Every morning!

10) BERDOA

After all, THIS IS THE MAIN POINT. Doa banyak banyak, and berusahalah. Yakin eczema tu akan sembuh. Buatlah puasa sunat, puasa nazar. Sedekah .Solat hajat semua yang possible. mintak Allah tunjukkan jalan. Kita cuma usaha je, yang lain kita tawakal InsyaAllah.



3 weeks after eczema still experimenting




                                                           Still eczema, dah nak OK sikit



                                  Right after full recovery, kita jalan jalan.yabedabeduuuuu


Gambar initial nanti kita upload, boleh compare kan? Hope it helps mommies yang tengah deal dengan baby eczema. Wat I can say, is trust your instinct, know your baby needs & buat decision tu fikir pro & cons. Jangan ikut org cakap terus je buat. Think first. insyaAllah